next_to_normal: (Miss Kitty Fantastico)
[personal profile] next_to_normal
Before we get into the latest health debacle, here is a public service announcement: NPR is streaming the cast album of the new musical Hamilton for free before it's available to buy (Friday on iTunes). And you should totally go listen to it, because it's Lin-Manuel Miranda and Alexander Hamilton and hip-hop founding fathers, which totally should not work, but it's fantastic and frankly would have been worth puking my way through New York to go see it a few weeks ago (though fortunately I did not have to, because it was during my 10-day non-puking window, more on that later). 

Hamilton is the most talked-about musical of the year, and it's totally going to win all the Tonys, and it's sold out for months, so back in July when my theater buddy Christi suggested we get literally the last two available tickets for Labor Day weekend, I figured hey, why not? Maybe I'll be better by then. Which was foolishly optimistic, but again, no puking so it all worked out, I guess, and I'm really glad I got to see it.

So go listen and be jealous that I've seen it.

Well, I'm on the hardcore drugs now, whoo. After breaking my 10-day no-puking streak, I went back to the doctor, and they were like, "Well, you look like death," and immediately pumped me full of fluids again. I also dropped out of the antibiotic clinical trial, which didn't seem to be doing anything, although it was probably too early to tell but essentially I was so sick that we couldn't wait any longer to see if I was getting real drug or placebo. 

I'll eventually get on another Crohn's treatment (once my insurance approves it), but for now we're just working on getting some effing RELIEF from the symptoms. So now I'm on Prednisone and Percocet and another anti-nausea drug and an antacid, all of which together is kind of helping? I mean, I'm technically functional, but it's all just temporary, I can tell, because like I'll feel okay but then as soon as the Percocet wears off, the pain comes back immediately and forcefully. And the Prednisone is definitely increasing my appetite, but I still have to be careful how much I eat because everything is still all messed up in there and if I don't take the meds on schedule, I CAN FEEL IT.

I also feel super out of it, so I guess it's a good thing I've been forbidden to go to work for the week, lol. Fortunately I can work from home, since I am totally out of vacation days at this point. 

I think I had more things to say, but honestly it's hard to concentrate, lol. Percocet is some good stuff, yo. 

Date: Sep. 23rd, 2015 05:58 pm (UTC)
From: [identity profile]
Lauraaaa *hugs you* I so hope the new meds will at least provide relief for your symptoms. PRAYERCIRCLE <3

Yay a stream link! Taking a moment to listen to playlist 1 while my feet rest from all the walking. LOL THIS WILL BE THE COMPENSATION FOR THE FACT THAT I DO NOT HAVE THE $$$ TO GO SEE IT LIVE (ASIDE FROM THE FACT THAT IT'S PROB SOLD OUT AS YOU SAID). That being said if you have other precious tips for my remaining four days in NYC, then I'm listening!!!!

Date: Sep. 25th, 2015 02:14 am (UTC)
From: [identity profile]
"I just go see shows." VALID LIFE CHOICE, TBH.

I'm going to try the lottery thing, but for some reason it's super difficult for me to get in time anywhere these days OTL. Let's hope that I'll manage better tomorrow than I did today ^^

Date: Sep. 24th, 2015 03:36 am (UTC)
ever_neutral: (Default)
From: [personal profile] ever_neutral
Well, I'm glad you are getting a respite. </3


Date: Sep. 29th, 2015 08:25 pm (UTC)
From: (Anonymous)
Wanted to send hugs!! Get in touch sometime.
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