May. 16th, 2015

next_to_normal: (nap)
Though it was touch and go for a while there.

Good lord, it has been over a month since I last posted anything and *mumbledy mumble* since I last responded to comments, because I am a terrible human being. Let's see... well, on the Crohn's front, the Humira worked really well for a while until it didn't, and now I am sick and kinda miserable again. We are running out of new drugs to try, though, so the best option might be to stick with the injections. The thing about Humira is that it has been on the market for years, but it is generally assumed that the FDA-approved dosage is not sufficient for a lot of people, hence why they are doing clinical trials at a higher dose like the one I just did. And I will say, when I was getting 4 injections a week, I felt a LOT better. But  after the first month, I dropped down to the approved dose of one injection every other week, which ain't doing it for me. Once the trial's over, I can maybe go up to weekly instead of every other, so hopefully that's enough? I have a few more weeks on this clinical trial and then another colonoscopy YAY

On the plus side, I have not regained the 15 pounds I lost, and I have acquired a new skill in administering subcutaneous injections? \o/

This whole trial has coincided - naturally! - with the BUSIEST TIME OF THE YEAR in work, since we had our big conference thingy last week, in which I have a WHOLE DAY that I am responsible for and it basically takes over my life for the six weeks prior. It went really well and everyone was happy and then I came home and literally slept for 18 hours. Oddly enough, prior to the conference, I'd been having some really unpleasant insomnia, possibly as a side effect of the Humira? But apparently I managed to cure that by working myself to the point that I literally could not stay awake any longer. (Or the insomnia's just not affecting me as much now that I'm on a lower dose of the drug.) Yay?

And of course, because Marvel is COMPLETELY INCONSIDERATE about scheduling their movie premieres during the WORST WEEK OF MY LIFE, I have not had the opportunity to squee over Avengers: Age of Ultron. Then again, perhaps it was for the best that I wasn't posting linkspams during the press tour, because it was a pretty epic shitshow, lol. Seriously. Joss was tired and cranky and then quit Twitter. RDJ walked out of a really uncomfortable interview. Chris Evans was noticeably drunk for the whole thing. Jeremy Renner was a douche. And poor Mark Ruffalo was publicly begging his own employers to put out some goddamned Black Widow merchandise because Disney doesn't care about girl fans.

I did get to see the movie, and I will have a long rambly post about it at some point. I was kind of hoping to see it again before I tried to gather my thoughts, since I was fairly exhausted and just wanted to squeeze it in before the conference started because I knew if I didn't, I'd totally spoil myself. But I'm not sure when I'm going again, and I have almost 2,000 words written, lol, so we'll see. 

I feel like there are a lot of TV things I should want to talk about, but it's all a bit of a blur. I sort of gave up on posting linkspams, what with being exhausted and not having any time. But I'm actually not sure I want to go back to them? Way back in yesteryear, I used to have a lot more ~thoughts and, like, wrote actual posts about actual things, and I would like to do more of that, if I can remember how to sentence the words and whatnot. The linkspamming is sort of a shortcut to say "hey things are happening with things I care about!" without having to put a lot of thought into it, whereas ideally I would maybe address fewer of those things but actually have something to say about them? I don't know. Maybe I will just disappear for another six weeks and only pop up to reassure you I am still breathing.

So, how have YOU been? What's new? What have I missed?
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